McMan's Depression and Bipolar Web
  Home  Articles  Links  News  Newsletter  Books  Forum  Community  Search  Donate

Your Depression and Bipolar Disorder Source


Knowledge is Necessity


A tale of two brothers.


"Robert will need lots of people to make it work."


Main articles page.

Go here.


More Issues and Advocacy Articles

What is right/What is wrong

People Like Us

Stronger Than We Seem

Imagining Robert

West 47th Street

One Flew Into the Cuckoo's Nest

American Snakepits

Kay Jamison Interview

The Drug Industry

Drug Money

Side Effects

Funny Numbers

That Overlooked Statistic

But Is It Depression?

Something To Be Upset About

The Lithium Saga

The Pill Game

The Media

Blunderland

Public Policy

Bad Hair Day Philippic

Forced Meds Treatment - The Real Issue

Jane's Day in Court

Vintage Torrey

Rehashing Old Myths

The Two Toms

Down and Out

 

 Imagining Robert


A scruffy animated man is chattering away with no teeth to interrupt the flow of syllables, his monologue often very difficult to follow, but the effect is somehow an engaging cross between Zorba the Greek and Tevye from Fiddler on the Roof. The man is a born actor, and, indeed, as a young man he had a scholarship to study acting. He is chomping, in a manner of speaking, on a cigar, and is sporting a new pair of sunglasses, Polaroid sticker still on the lens. He is out on the town, which is no ordinary event. He is Robert Neugenborgen, in his fifties, and for most of the last 37 years he has been locked away in hospitals, much of it in isolation and in humiliating and brutalizing situations that pass as treatment. His brother, Jay, wrote two extraordinary books on their relationship, the first called "Imagining Robert", which is now an hour-long documentary of the same name, produced and directed by Lawrence Hott. The film was screened at a session of the 2002 NAMI annual conference in Cincinnati, and by the time it was over there was scarcely a dry eye in the house.

For most of Robert’s life, his family entrusted his care to the state of New York. Then, in the nineties, with raising his own family out of the way, Jay was able to devote more time to his brother. Realizing that the state hospital only exacerbated his brother’s condition and trusting that a half-way house might be the answer, he innocently asked the person in charge what he could do to get help, only to be told to talk to the Governor followed by a dial tone.

Jay did just that - wrote to the Governor - and soon after that all hell came down on the hospital holding his brother. This led to his release into one of the Fountain House’s half-way houses, which was featured in another recent documentary, West 47th Street (see article). The right environment can indeed work wonders, but miracles take time. Fortunately, when Robert assaults a worker he is not put in five-point restraints and shipped off to isolation. Rather, he and Jay attend a meeting frequented by Robert’s case manager and other Fountain House staff. Robert is wearing earmuffs and is plainly displeased at having been sent to the equivalent of the principal’s office, but his mere presence there represents a miracle in its own right, for the people in the room are clearly committed to enabling Robert to have a life of his own.

On a day trip to their old neighborhood in Brooklyn, the two happily reminisce over old times as Robert checks every public telephone they pass for loose change while joking, "Everyone should have a hobby." On another outing, however, Robert is acting up, talking loudly in a Chinese restaurant and otherwise making a spectacle of himself. "It’s not fun relating to Robert on days like this," Jay confides. "I’m very angry with you!" his brother scolds, before making a grand sidewalk exit with a resounding stage door slam. A minute later, he reemerges and hugs his brother.

Robert had his first breakdown at age 19. Eventually, his mother said, "I can’t take it any more," and signed him over to the state. "A lot of parents said to me, ‘I wish I had your mother’s courage,’ Jay discloses.

Robert is still at Fountain House 18 months later, now working as a receptionist, camera on his shoulder, interviewing his case worker. Just being able to function in a half-way house represents an important achievement for Robert, which is the note on which the film ends, but in the sequel to the book, "Imaging Robert", "Transforming Madness", Jay dares to imagine his brother in his own apartment leaving for work and stopping at a local bakery for coffee and to read his paper and kibitz with the other patrons. With hope anything is possible, but in the film Jay seems resigned to his brother’s present situation. What may seem like a contradiction to outsiders is undoubtedly a fact of life for caregivers, who somehow must come to terms with things as they are while working to achieve what could be. Either way, Robert will continue to need lots of people to make it work.

For free online issues of McMan's Depression and Bipolar Weekly, email me and put "Sample" in the heading and your email address in the body.

Buy Transforming Madness from Amazon.com.

Issues and Advocacy articles   All articles

Post your opinion  here.


 

 

John McManamy

Order my book on Amazon

Order now


Newsletter

Your online source for issues that matter to you.

For free samples, email me and put "Sample" in the heading and your email address in the body.

Find out more.


Bookstore

Shop for depression and bipolar books online here.